Keelie had her surgery and in the hospital they even put her in isolation( well the nurses were forces to wear masks and gloves and gowns anytime they touched her- yet our friends and family came in and out as they please- some great isolation!) anyways they really didn't seem to concerned with the reaction instead just gave her benadryl(which helped).
The reaction gets so bad back home that we go see Keelies peds Dr. Knowing that it always works out that as soon as you get in to see the Dr the rash or whatever is gone I started taking pictures. We showed Keelies Dr the pictures and she walked us right over to Allergy. Dr Weber said it was Viral- prescribed her some new meds and away we went
2 months later we went back to see Dr Weber again. We told him its still happening- sometimes even worse then before and shouldn't it have gone away by now if it was viral. He ups her meds(Zyrtec) and gives her a new one for nighttime- aterax.
New years eve Keelie broke out in a totally different rash. Spent some time in the Er she got some good drugs and we went on our way. Followed up with Dr Weber on Monday. He this time referred us to Dermatology. What a waste that was! Well actually it was Tricare's fault not Dr Weber's, they scheduled us with a PA instead of the derm doc, which we didn't know at the time. The guy barely listened to me wouldn't eve look at the pictures and told me Keelie has eczema. Ya freaking right- I'm no Dr but seriously, eczema does not involve welts or hives. The man went on and on about bleach baths and special body wash and whatever. I gave up and made a note to speak with her peds doc asap.
Dr Newman's (peds doc) first words were eczema doesn't cause welts I'll give you a referral for a second opinion but it will prob go to one of the children's hospitals. Referral came through and we saw Dr Tweed or as his office ladies call him Dougie Houser(sp) He's very young looking! When he first looked at the rashes his initial diagnosis was pediatric Rheumatoid arthritis- can i run the other way now?!! However Keelies physical symptoms other then the rash/hives did not match. So after a million and 1 questions, and a scratch skin test he diagnosed her with Chronic Delayed Pressure Urticaria- in English terms
Delayed pressure urticaria is a type of chronic hives called physical urticaria because the hives are caused by a certain stimulus on the body. In this case, the stimulus is pressure that's applied to the skin. The cause of pressure urticaria is unclear but it is likely to be an autoimmune disease. Cells called mast cells play an important part in the process. Mast cells are tissue cells that contain chemicals, including histamine, which provoke welting
Pressure urticaria is an uncommon form of physical urticaria. Pressure urticaria may occur immediately (within minutes) after a pressure stimulus ; however, more commonly, pressure urticaria develops after a delay of 4-6 hours after a pressure stimulus; hence, the designation delayed pressure urticaria (DPU) is used. The wheals may last for 8-72 hours. The hands, feet, trunk, buttocks, legs, and face are the most common areas affected. Lesions can be induced by a variety of stimuli, including standing, walking, wearing of tight clothes, or sitting on a hard surface
The common range of the urticaria lasting is 9 years- while I hope to god this will not be the case Keelie is at least on drugs for now that help make her comfortable and be able to be a kid!
Delayed pressure urticaria is considered a rare entity and if you know Keelie she is def a rare entity!!
